Parent Partnership News

 

 
 
                                  e-bulletin 3: 2013
 
A round up of the latest news and information from the Parent Partnership Service.  Don’t forget to visit our websitewww.coventry.gov.uk/parentpartnership/ 
 
The Parent Partnership Service is a statutory, confidential service for parents and carers of children and young people with special educational needs and other disabilities or additional needs.
 
 
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This is the last E-Bulletin of 2013.  Parent Partnership Service would like to wish all of our readers a Very Merry Christmas and a Happy New Year. Here’s to 2014!
 
 
 
 
Hot Topics
 
 
Secondary School Admissions Research
 
Coventry Parent Partnership Service have been asked to share a link with parents, carers and colleagues who you think might be interested in giving their views on the following subject:
 
The Office of the Children’s Commissioner has commissioned the National Foundation for Educational Research (NFER) to look at the admission policies of secondary schools, with a particular focus on children and young people with Special Educational Needs.
 
How can you help?
 
Are you a practitioner who has recently worked with families of children with SEN applying for a secondary school place for their child and are you willing to share your views and experiences in a focus group with other practitioners?
Can you put us in touch with individual parents or carers who are willing to share their experiences with us over the telephone? Or, can you put us in touch with a group of parents who are willing to share their experiences in a focus group discussion?
 
For more information and to register your interest in taking part in this research, please visit the NFER project webpage: www.nfer.ac.uk/research/projects/secondary-school-admissions/ or email Kerry Martin Research Manager (NFER) at: schooladmissions@nfer.ac.uk
 
 
 
SWAN UK
 
SWAN UK is an initiative of Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. On 26th November 2013 an event took place which brought together health professionals and parent carers of children with undiagnosed genetic conditions to share information, increase awareness of why some children remain undiagnosed, identify the issues this causes for families and what support is available. The event was sold out well in advance but SWAN UK hope to make the presentations available online shortly,  To be added to the mailing list please email Polina@geneticalliance.org.uk
 
SWAN UK can be found at: http://www.undiagnosed.org.uk/           SWAN UK, Unit 4D Leroy House, 436 Essex Road, London, Lnd SW4 9
 
 

DDD Newsletter Now Out!

Deciphering Developmental Disorders (DDD) is a genetic research study aiming to find new causes of developmental delay in children with undiagnosed genetic conditions.

Over 600 families have now been recruited and 300 likely diagnoses reported back to clinic teams.  The majority of the genetic changes found so far were new and not inherited from the parents.  Where nothing has been found the samples will continue to be tested. 


The power of DDD lies in its size; the more families involved, the more chance of finding new causes of developmental delays.


To get involved or to read the DDD newsletter click 
here.
 
 
 
Parent Partnership News
 
Parent Information Sessions
Coventry Parent Partnership Service has arranged the following free sessions for parents/carers of children who have SEN and Disabilities. 
Date of sessions
Time of sessions
Title of session
3rd December 2013
10.00am – 12.00pm (9.30 for coffee)
Access & Technology
4th February 2014
10.00am – 12.00pm (9.30 for coffee)
Family Fund
4th March 2014
10.00am – 12.00pm (9.30 for coffee)
Learning & Behaviour Support Service – Behaviour
1st April 2014
10.00am – 12.00pm (9.30 for coffee)
Learning & Behaviour Support Service – Dyslexia
15th May 2014
7.00pm – 9.00pm
Family life and Siblings – Contact a Family Charity
19th June 2014
7.00pm – 9.00pm
Understanding your child with Autism – Integrated Children’s Services ASD Team
15th July 2014
10.00am – 12.00pm (9.30 for coffee)
Speech and Language
 
If you would like to book a place or for further information please contact Lorraine at Parent Partnership Service Tel: 024 7669 4307 or Email: parental.partnerships@coventry.gov.uk
 
Coffee Mornings – Just drop in
Are you a parent of a child with a Special Educational Need (SEN) and / or a Disability?  Do you have concerns about your child’s progress and need some information about:
·         SEN procedures and provisions
·         Exclusions
·         Creating better links with your child’s school
Coventry Parent Partnership Service are holding a series of coffee mornings for you to drop in, chat to the team and meet other parents.
 
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Wednesday 4th December 2013
 
9.30am – 11.30am
 
Wednesday 5th February 2014
 
9.30am – 11.30am
 
Wednesday 2nd April 2014
 
9.30am – 11.30am
 
Wednesday 21st May 2014
 
9.30am – 11.30am
 
Wednesday 2nd July 2014
9.30am – 11.30am
 
If you would like further information please contact Lorraine at Parent Partnership Service Tel: 024 7669 4307 or Email: parental.partnerships@coventry.gov.uk        
 
Coventry Parent Partnership Service now have an on-line feedback form which is available for you to tell us about your experiences of the Service.  It would be helpful if you could spare 10 minutes to complete the survey which can be found at www.coventry.gov.uk/parentpartnership . The survey is located on the right hand side of the page in the grey box and is the button “Parent Partnership User Survey”.  All surveys can be completed anonymously or you can complete your contact details if you wish.
 
 
 
Other News
 
New Books
 
 
Description: Description: Description: Description: Description: Description: Description: Description: Description: Description: Description: Description: Description: Description: Description: https://gallery.mailchimp.com/ccef42bf50b804671c9a4d13b/images/C325_can_i_tell_you_about_ocd_200x3007064e47dabeb.jpgCan I tell you about OCD? A guide for friends, family and professionals
By Amita Jassi
 
Meet Katie – a teenager with Obsessive Compulsive Disorder (OCD). Katie invited readers to learn about OCD from her perspective,
helping them to understand what it is, how her obsessions and compulsions affect her daily life, and how people around her can help.
 
 
 
 
 
 
 
 
 
 
 
 
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By Rachel Janney and Martha E Snell
 
Need a quick, practical, ready to use guidance on teaching all students and making appropriate modifications for students who need extra support.
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
Contact a Family have produced a guide for parents of disabled children. It contains information about spotting the signs of bullying, the action you can take, your child’s rights and stories and tips from other parents.  The booklet can be accessed by using this link:  www.cafamily.org.uk/media/721109/bullyingcurrent-last_updatedoctober2013for_web.pdf
 
MindFull
MindFull is a new online service for 11-17 year olds, providing support, information and advice about mental health and emotional wellbeing; helping them to overcome life’s ups and downs and feel confident and happy about who they are. They choose the type of support they receive and, because MindFull is online, they can get it whenever they want it, wherever they are.
MindFull is open every day, between 10am and midnight.   To find out more visit their websitewww.mindfull.org/
 
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Christmas Disco – Saturday 21st December 2013, 7.00 p.m. – 11.00 p.m.
 
A Christmas disco is being held at The Westwood Club, Westwood Heath Road, Coventry, CV4 8GP.  (Tel: 024 7676 6619)
£2/adult, £1.50/child (paid in advance)    £2/adult, £2child (paid on the door)     Santa’s Grotto (£1), Face-painting(50p),  party games and dances, DJ, raffle
Contact Teri for advance purchases/donations.  Email: teri.chaplin@yahoo.co.uk    or Tel: 07808 851581                  All money raised will be given to The National Autistic Society.
 
 
Short Breaks Christmas Activities for children/young people with SEN/disabilities
 
This is a reminder that the booking hotline for Christmas activities will be open fromMonday 2nd December 8.30am-5.00pm by contacting Michelle Roberts, Short Breaks Development Officer, on
telephone:   024 7678 6087. 
 
Activities are as follows:-
 
  • Saturday 14th December: Christmas Party 4pm-6pm at AT7 Centre – parents must stay
  • Monday 23rd December: Christmas arts & crafts 9am-11.30am at Broad Park ages 0-11 yrs
  • Monday 23rd December: Christmas arts & crafts 11.45am-2.15pm at Broad Park ages 12-18 yrs
  • Monday 23rd December: Christmas card making and wii games 3.00pm-5.00pm at Broad Park 8-18 Years
  • Tuesday 24th December: Christmas movie and games 9.00am-11.30am at Broad Park ages 0-11 years
  • Tuesday 24th December: Christmas movie and games 12.00pm-2.30pm at Broad Park ages 12-18 years
 
 
Please note, bookings will be  on a first come first serve basis so please ensure you book early on Tel: 024 7678 6087 to avoid disappointment.
 
 
 
 
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Parent Participation in Coventry
One Voice Parent Group – parents working together for change
 
 
The One Voice Parent Group is a group of parents of children with special educational needs and disabilities who have joined together to help influence and shape services for disabled children in Coventry.
 
The Group was originally formed as part of the Aiming High for Disabled Children programme.
 
Through the work of the Group we aim to:
 
       Raise awareness of the impact of a wide range of disabilities
       Influence decision makers
       Provide views based on personal experiences
       Share information and provide support to other parents and carers
The Chair of the Group Kellie Jones is currently a member of a strategic board which is looking at Special Educational Needs and Disability Services in Coventry. Members of the Group are often invited to give their views concerning the services their children access. The views of parents really matter, particularly during times of change so please help us by getting involved.
If you would like to be included please contact us via the website / Facebook or by telephone 078 7424 2733 or 024 7669 4307